New Date Set

Wellllll....January 31st I start total body irradiation. I have radiation 4 days two times a day starting Thurs. Yucky chemo after that. Bone Marrow Transplant date is set for February 7th. I have to check in the hospital right after my first radiation treatment on Thurs at noon. They say I'll be in the hospital 4-6weeks. So that means 6-8 weeks probably.
This is my last weekend home. I ended up back in the hospital again last weekend because I had a fever. I only had to spend 2 nights, but with all the pain I was having, it was where I needed to be. I had a couple procedures last week two days in a row, and I was in a lot of pain afterwards. I'm okay now. I hate to be in pain. It's not fun. I'm still on IV antibiotics, but at least I'm at home. We are going to have a game night tonight. I hope I can beat Coleman, because he always wins, and then he gloats!!
I hope my mom brings my computer & xbox again the first day at Children's then I won't get bored out of my mind!
Wish me luck. I think I'm gonna need it

Still at home & feeling good - Transplant Day Set for February 8th

I have had a bunch of tests since I got out. I'm now going to Seattle Cancer Care Alliance for most of my test, and then I'll do the hopsital stuff still at Children's Hospital. So far they say the Transplant will be done around February 8th, since the donor needed an extra week. That makes radiation start aroudn Feb. 1st. Not looking forward to that. Dr's said it would be 4 days of total body radiation two times a day. Hopefully I can do that and still stay home. Then its 2 days of chemo and that will be done in the hospital. Then stem cells or bone marrow, they still don't know what one I'm getting. It's all kind of wierd and sounds scary, but I have to do it. I dont' really have any other choice.
I haven't been doing much. It's nice to be home and in my own bed. I got a new tutor today from my school. She's going to help me get some work done.
I mostly dont' wnat to get another infection which will put me back in the hospital before I need to go. I think the next stay will be the longest one yet.

HAPPY HAPPY DAYS!! I'M FREE-----I'M AT HOME!! & the Seahawks won today!

I woke up this morning & guess what? My ANC was 240. All at once. Yesterday it was zero and today it's over 200, so we packed up & blew this popsicle stand! Got the computer back up and running in my bedroom at home, so I'm good to go.

GO SEAHAWKS!! What a great game today. My mom packed up like a crazy person during the game, but got done in record time. My grandma dama came down too. My dad & Uncle Ted got to go to the game today, and as soon as it was over they were here to h elp take the lsat load to the car.

Mom brought Max down to the hospital and he was very happy to see me. He's a crazy dog. I missed him alot.


I can't say enough about FRESH air. It felt good to get out of the hospital after 46 day s. It just goes to show you that everyday is a new day, and you never know what will happen next. I plan on enjoying this day, and tomorrow too.

Thanks everyone for visiting, and thanks to all my nurses for everything! I know I'll be back soon enough, but I will enjoy the time I have at home alot.

It's a NEW YEAR

Happy new year. My new years reslution is to get this bone marrow business over with. Still no white blood cells yet. I have to get another biopsy to see if my bone marrow is working tomorrow. Obviously its not working, or I'd have wbc's already. I hope this one doesn't hurt as much as last weeks. I have an appointment at the Fred Hutch place on the 8th, but I dont' think they are going to let me go out. My parents will have to go without me. I like it better when I get to hear what these doctors say, so I know what's going on. The waiting is hard. But I do have my computer and xbox so that helps me pass the days here. I do like the nurses, they are all really nice to me. I have a teacher named Lisa who has been helping me too, and she's real nice too.

I have a new Cousin - his name is Cameron

On December 28th at about 8am, my cousin Cameron entered the world at 8 pounds 8 ounzes. His lucky number will be 8 I guess. My mom went to see him at the hospital, here is a picture. Congradulations to my Uncle Erik and Aunt Becky. I can't wait to meet him.

Still Waiting for White Blood Cells

The wait seems forever. I had my 14th Birthday here on Dec 26th. My mom suprized me with a birthday party. She had to keep it fairly small, but I was suprized. I had vanilla cake with rasberry filing, whic h was good, then we had pizza. I got lots of presents. Again! It' s really not bad having a birthday right after Christmas, because I have 2 days of presents! My mom gave me 14 pennies, nickles, dimes, quarters, fifty cents, dollor coins, dollor bills, 5 dollor bills and 10 dollor bills. As you can see I was quite happy about that present! We're gonna load that money on a visa card so I can go shopping from my computer here at the hospital.

I had a bone marrow biopsy on the 27th, so now my bottom hurts. They extract bone marrow out of the bone, and they took a little piece of my bone to look at. Nothing new, not a lot of activity in there. The doctors did say that was fairly normal since I had two back to back chemo's. I've had no white cells since 11/30. I hope this doesn't stop my transplant. I know I have to have a certain amount of cells before they can do it. I guess we wait and see.

If you feel like it, come for a visit.

Merry Christmas Everyone!

Well, al in al I had a good day. Santa visited me and gave me presents! My nurses were all super nice today and my mom and dad gave me lots of stuff. Cole came down to open presents together. We have to open some presents at the same time because we often get the same things. I saw the Adams famly yesterday and played Apples to Apples. Cousin Alicia won! My uncles & grandma dama came to see me tonight. Mom brought down dinner, but I really liked the scaloped potatoes from my grandma dama. I did get a whole strawberry rubarb pie from granpa Jack the other day. Food is starting to taste better.
I still don't have any white blood cells yet. What's up with that? I hope everything is going to still work out for me and I can get out of here sometime soon. I'm not really looking forward to spending my birthday here tomorrow, but I guess I got to.