My hospital stay never ends!

well.....I'm back in the hospital again. Since my last post, I got out last Sunday, was back in by Monday. I have a terrible, terrible headache and I'm sick all the time. I have a bleed in the head, probably from the blood thinner to disolve the blood clot in my leg. I've been having a lot of headaches, so there is something else going on, but nobody knows what it is. My kidneys are being stupid too. They are only working at about 50% right now, but they are getting better. All the drugs they give me are bad on the kidneys, so they've taken me off those, and are trying different ones. Will this ever end? It seems like I get all the side effects plus more that they didn't even think of.
At least I can finally think, and it doens't feel like my head will explode. It will take weeks for the blood to be absorbed into my body from my head, I hope that doesn't mean the headaches will last weeks too. It's getting discouraging, but I keep going, one day at a time.

It's been a long month

Well, I've been in & out of the hospital a few times since I last posted to the blog. I've been so so tired all the time. I got an infection twice, had a fever so I had to go back into Children's Hospital. I was there a week, got out for about a week, then back in again for a week. I only made it home for 2 days, before I had to get an ambulance from SCCA downtown to Children's again. I'm in ICU now because they found a big blood clot in my leg. It goes from my knee to my groin area. I had to have filter inserted through my neck, jugular vein, over the main vein, so that if the clot let go, it would not get to my lungs or heart. Now I'm getting medicine called TPA to try to disolve the clot. I'm going to get an ultrasound done later today to see if the clot is smaller. If it is not, then they will go in with a tube and try to put TPA right by the clot, which should dissolve it. I'm just glad they figured out why my leg hurt so much.
It feels like everything happens to me. I'm sick and tired of all this stupid treatment, and cancer in general.

Back out & doing great

My mom usually helps me type, but she' s been so busy with work that she hasn't had time. Tax day has come & gone, thank goodness. With dad gone to Alaska and mom so busy with taxes and me with all my appointements, it's been pretty busy around here. I got stuck in the hospital for one week. My WBC came back all in one day again, so we "checked-out" that day. I've had a bunch of infusions of antibitics, and antibodies since then. But that's all been done at the SCCA downtown or at home. Not the hosptal.
The doctors say I'm doing great, but I feel pretty tired still. When I got out of the hospital I was sleeping all the time. It's a little better now, but I still feel tired a lot.
Cole drove me to the movies tonight. He got us a free movie at where he works. That's pretty cool. I have to stay away from crouds, but it wasn't a busy movie and we stayed away from all the people. I have to be able to do some stuff. I really want to go to a Mariner game, but it's too crouded there. I got tickets and everything, but I dont' think I get to go. I guess I have to stay out of the sun too. That's going to be hard during the summer months.
Anyway, I'm glad to be free again. I like my comfy new bed much better than the hospital beds.

Here we go again Back to Children's

Here we go.....I got an infection, so had to go back in to the hospital. I was hoping to be out already, but my white blood cell count is down again, so...............we wait!
Frankly, I'm getting pretty tired of waiting. I finally had a friend over to spend the night on Wed, and got a phone call from the P.A. (physition assistant) at 9pm to tell me something grew, so I have a bacteria infection. Probably in the Hickman line. Back to the nightmare.
I guess we were feeling pretty confident, since everything was going so well. Who knows what this all means, but I sure hope those wbc's will do there thing, and get with it. I just want to get back to normal, have some energy to play outside, and get on with my life. This is getting old.
My mom has been working like a mad woman, trying to get everyone's taxes done. My dad went to Alaska to go fishing and bring us home some money. My cousin Diana has been driving me a round. She's here from Utah. Jeanine's been here from Canada the past couple days, so my mom can work. We'll all just be happy when I get out of here!

Spring is here

I'm looking forward to Spring and some sunshine! I'm still out of the hospital!! Although I did have to go to Childrens' last night for an IV antibiotic infusion, but I only stayed for 3 hours. I got some virus in my stomach (I dont' feel a thing) so I need antibiotics twice a day by IV. My mom & dad have turned into nurses, so they will do that at home from now on. I still have to go to lots of appointments but at least I get to sleep in my own bed. And its a good bed. My mom & dad bought me a new big bed while I was in the hospital, so it's really comfy.
I've been playing lots of video games on my computer and xbox live. I know I have to start doing schoolwork soon. I got a couple new tutors, which start tomorrow. Its still hard to focus so its hard for me to do school work. But I really just want to go back to school and be normal again. Hopefully I can catch up and be back with my friends soon. And, hey, Austin, I would love help doing my homework!!

HOME SWEET HOME

Yep, I am officially home! It was my 2nd night in my own bed, and I liked it! I've had 2 days of appt's in downtown Seattle at SCCA, but, I get to go home after! I like it much better. I'm feeling better every day. Thank you to all who helped me, wrote to me, visited me, prayed for me, and everything. I wish I could go back to school, but, not until Dec 5th. That will be my 300 day marker.

The END of my hospital stay is near!!

Yep, it's true. I believe on Tues they are going to let me outta here for good. I've been getting 4 hour passes for the past several days to leave the hospital during the day. I've just been going home and resting, watching my dvr'd shows, but it's way better than the hospital. I get another 4 hour pass today at 3-7pm. My mom got me a brand new bed the other day. It's really nice. Brand new sheets and everything! I'm going to bring my xbox home today so I can hook it back up to LIVE. LIVE never did work at the hospital. The IT guy never did come, even though we asked like 5 times. Oh well. I can see the light at the end of the tunnel now!

I do have some graft vs host desease (gvhd). My hands were really pealing bad, and they were burning for several days last week. They gave me some kind of steriod, which has stopped it somewhat. I'm pealing other places too, but the hands are the worst. I dont' know what happens after I leave the hospital. I know that the 1st 100 days of the graft are important, and I have to be within 30 minutes of SCCA, that's downtown Seattle. We can make it there in 29 minutes using the carpool lane, so we are ok living at home. I'm really glad we don't have to move. This whole thing would have been so much harder without my friends coming to visit and my family being here for me. Every weekend since Oct 11th my uncle Ted, and my "auntie" Jeanine has come to spend the night with me. They were a nice change from my parents. I can't wait to get out of here, and off the pain medication, so I can get back to feeling normal again. It's still going to be a long time before I can go back to school. They said 300 days, so that would be Dec 5th. The 100 days is May 18th.

Anyway, I do not know the future, but I am looking forward to this afternoon, when I get to go play with my little dog, MAX.