New Date Set

Wellllll....January 31st I start total body irradiation. I have radiation 4 days two times a day starting Thurs. Yucky chemo after that. Bone Marrow Transplant date is set for February 7th. I have to check in the hospital right after my first radiation treatment on Thurs at noon. They say I'll be in the hospital 4-6weeks. So that means 6-8 weeks probably.
This is my last weekend home. I ended up back in the hospital again last weekend because I had a fever. I only had to spend 2 nights, but with all the pain I was having, it was where I needed to be. I had a couple procedures last week two days in a row, and I was in a lot of pain afterwards. I'm okay now. I hate to be in pain. It's not fun. I'm still on IV antibiotics, but at least I'm at home. We are going to have a game night tonight. I hope I can beat Coleman, because he always wins, and then he gloats!!
I hope my mom brings my computer & xbox again the first day at Children's then I won't get bored out of my mind!
Wish me luck. I think I'm gonna need it

Still at home & feeling good - Transplant Day Set for February 8th

I have had a bunch of tests since I got out. I'm now going to Seattle Cancer Care Alliance for most of my test, and then I'll do the hopsital stuff still at Children's Hospital. So far they say the Transplant will be done around February 8th, since the donor needed an extra week. That makes radiation start aroudn Feb. 1st. Not looking forward to that. Dr's said it would be 4 days of total body radiation two times a day. Hopefully I can do that and still stay home. Then its 2 days of chemo and that will be done in the hospital. Then stem cells or bone marrow, they still don't know what one I'm getting. It's all kind of wierd and sounds scary, but I have to do it. I dont' really have any other choice.
I haven't been doing much. It's nice to be home and in my own bed. I got a new tutor today from my school. She's going to help me get some work done.
I mostly dont' wnat to get another infection which will put me back in the hospital before I need to go. I think the next stay will be the longest one yet.

HAPPY HAPPY DAYS!! I'M FREE-----I'M AT HOME!! & the Seahawks won today!

I woke up this morning & guess what? My ANC was 240. All at once. Yesterday it was zero and today it's over 200, so we packed up & blew this popsicle stand! Got the computer back up and running in my bedroom at home, so I'm good to go.

GO SEAHAWKS!! What a great game today. My mom packed up like a crazy person during the game, but got done in record time. My grandma dama came down too. My dad & Uncle Ted got to go to the game today, and as soon as it was over they were here to h elp take the lsat load to the car.

Mom brought Max down to the hospital and he was very happy to see me. He's a crazy dog. I missed him alot.


I can't say enough about FRESH air. It felt good to get out of the hospital after 46 day s. It just goes to show you that everyday is a new day, and you never know what will happen next. I plan on enjoying this day, and tomorrow too.

Thanks everyone for visiting, and thanks to all my nurses for everything! I know I'll be back soon enough, but I will enjoy the time I have at home alot.

It's a NEW YEAR

Happy new year. My new years reslution is to get this bone marrow business over with. Still no white blood cells yet. I have to get another biopsy to see if my bone marrow is working tomorrow. Obviously its not working, or I'd have wbc's already. I hope this one doesn't hurt as much as last weeks. I have an appointment at the Fred Hutch place on the 8th, but I dont' think they are going to let me go out. My parents will have to go without me. I like it better when I get to hear what these doctors say, so I know what's going on. The waiting is hard. But I do have my computer and xbox so that helps me pass the days here. I do like the nurses, they are all really nice to me. I have a teacher named Lisa who has been helping me too, and she's real nice too.