I've been trying to update the blog, but I must admit it is hard. There are just so many tears. I didn't' really know a person could cry so much or so often. I also can't believe how many people love & care about our family! It really is awesome, all the prayers & positive thoughts that have come our way.
Grant continues to improve. His brain is healing. He's talking more, in full sentences. He's starting to eat!! He had some cake from his dad last night. Leave it to Matt to bring down some squirt guns and plan an ambush against his brother! I think Grant enjoyed that. He knows it's been so hot outside......... and he is stuck in a bed. I'm sure he's wishing he was out there with his friends. He does often look sad, and there aren't' very many smiles lately.......but he's still fighting.
The blood clots are still our biggest obstacle right now. They go from both knees up to the filter in the main vein, below the kidneys. The filter is holding, and there aren't any clots in his arms or lungs or anything. His thighs are still huge, and I know they are painful. He's on IV pain meds all the time, and they have been increasing. The further we get away from the head bleed, the better. We have to weigh the risks vs the benefits of blood thinners, before they can be used again. But, the older the clots get, the more permanent they become, and blood thinners wont' get rid of the old clots, it just keeps knew ones from forming. I don't' believe we can use the TPA again, either, which is what broke up the one in his calf before. Too much risk of a head bleed, which could be catastrophic. So.....we wait. We used to call that "Norwegian Stand-By" on the fishing boat. We wait, and wait. And wait some more.
Matt, Me & Jeanine are on 24 hour shifts right now. Thank God Jeanine has been here (my lifelong friend who lives in B.C.) these past few months. Her presense allows Matt & I a night off from the hospital, and allows me to work a bit. Everyday life has been a challenge, as life still goes on, even when your son is sick in the hospital. Coleman is doing ok. He's working at the movie theatre and loves the freedom of having a car! He finished his sophomore year with a 3.5 gpa, so I can't complain!
Take care all, I will report back soon.....................Kim
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2 comments:
Oh Kim!
I'm so happy to see your update. It has been such a struggle for you all and yet, taking the time to update all of us who are waiting and praying with you is such a blessing. Thank you!
As a mom of a sick son I know the tears will come and come often. Let them flow! Meanwhile we're celebrating the small moments and victories you've shared today- Grant speaking in full sentences, continued healing in his brain, Coleman's job and successful school year, an Grant's appetite for cake and squirt gun ambushes!
You are all so loved and we will continue to pray for Grant's comfort and healing.
Love, Sue Perry :-)
It's so great to see some good news about Grant. Everyone at Brier Terrace is still thinking about him and pulling for him. Every bit of good news is a reason to celebrate and hope. I'm glad to hear that Coleman is doing so well, too, and that he had a great school year. Blessings on you all, and thank you for keeping us all in the loop through the blog. All the best.
Maureen Garrison
BTMS
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